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Spark Therapeutics Luxturna for blind to see costs $850,000

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Washington:

A new gene therapy treatment is developed to cure the blindness which costs $850,000 (U.S.) for a one-time treatment, the company that makes it has said on Wednesday. The  Spark Therapeutics Luxturna new drug that cures the blindness and it is one of the most expensive drugs in the world.

Jeff Marrazzo, chief executive of Spark said the cost of this Spark Therapeutics Luxturna is $425,000 per eye, or $850,000. This is the gene therapy in the United States (U.S) that treats a rare, inherited retinal disorder that can lead to blindness.

According to the company, the medicine can be injected in a single dose to the blind patient. Luxturna is a new drug to cure a rare form of inherited blindness and many other companies are developing the same type of therapies for several common diseases.

Luxturna

Jeff Marrazzo, chief executive of SparkThe manufacturer of this genetic treatment is a Philadelphia-based biotechnology company Spark Therapeutics.  Spark Therapeutics Luxturna was approved by the U.S. Food and Drug Administration in the last month (December).

Previously the spark said the therapy worth more than $1 million. But after listening to the health insurers about the affordability of the treatment the company decided to sell less than the $1 million. Currently, there are around 1,000 cases of people found with the hereditary retinal disorder and it is expected that 10 to 20 new cases to be added each year.

The cells which are located in the back of the eye that form the retina are gradually disturbed by the mutations. This can be lead to lose the vision. Previously there is no cure for the blindness.

The treatment involves injecting a cold virus directly into the eye to replace the faulty genes to the retina.

Spark said they will reimburse patients if the gene therapy treatment failed or if it is not to be effective.

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Maharashtra Farmers withdraw protest: Gov agrees to demands

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It is not easy for the Indian farmers to be identified for their protests. But in Maharashtra farmers were successful in bringing down the government to agree their demands. Over 35,000 farmers who started a long rally on March 6 and walked 185 kilometres from Nashik to Mumbai to meet the Chief Minister Devendra Fadnavis.

For not to cause any disturbance to the public the farmers have decided to march at night Their protest finally ended on a positive note. On Monday evening Maharashtra government announced that they have agreed most of the farmers’ demands including the right to forest land and waiver of loans. So that farmers have decided to withdraw their protest as the government agrees to their demands.

Thousands of farmers across Maharashtra started a long march from Nashik and reached Mumbai to voice their demands includes a complete farm loan waiver, implementation of  M.S. Swaminathan Commission report, transfer of forest lands to tribal farmers, higher rate for what they produce, securing land rights under the 2006 Forest Right Act.

Most of the opposition parties like Congress, NCP, MNS, and Shiv Sena leaders have supported the farmers and their protest against the government.

Shiv Sena leader Aaditya Thackeray said that I don’t see the red flags, I saw their red blood which is the same as ours, whichever the flag they carry, whoever their political hero government has to hear them. It is unfortunate to be insensitive to those who feed us and put ideological cages on them.

Rahul Gandhi tweeted the Congress party stands with the farmers and tribals marching to protest against the Central and state governments. ” I appeal to PM Modi and the CM to not stand on ego and to accept their just demands he added.

The farmers were led by the All India Kisan Sabha, and the government has arranged a special train for the farmers to go to their homes.

 

 

 

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Irrfan Khan diagnosed with rare disease Neuroendocrine Tumour

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Irrfan Khan

51-year-old actor Irrfan Khan has revealed about his health condition. Few days ago he told that he is suffering from a rare disease. He said that he has been diagnosed with a rare disease called a neuroendocrine tumour. He wrote on Twitter soon he will share the details about the disease.

Earlier this month Irrfan Khan tweeted about his disease and said he is going out of the country for the treatment. He requesting all his fans to continue sending their wishes. NEURO is not always about the brain it is not easy to search for the disease and to know about the disease on google.

Irrfan begins his statement with a quote by Margaret Mitchell — “Life is under no obligation to give us what we expect.  “The unexpected makes us grow, which is what the past few days have been about.  Learning that I have been diagnosed with NeuroEndrocine Tumour as of now has admittedly been difficult, but the love and strength of those around me and that I found within me has brought me to a place of hope.

The journey of this is taking me out of the country, and I request everyone to continue sending their wishes. As of the rumours that were floated NEURO is not always about the brain and googling is the easiest way to do research.  To those who waited for my words, I hope to be back with more stories to tell.”

Irrfan Khan tweeted on March 5 “Sometimes you wake up with a jolt with life-shaking you up. The last fifteen days, my life has been a suspense story. Little had I known that my search for rare stories would make me find a rare disease,” I have never given up and have always fought for my choices and always will.

My family and friends are with me and we are working it out the best way possible. In trying time, please don’t speculate as I will myself share with you my story within a week – ten days when the further investigations come with a conclusive diagnosis. Till then wish the best for me.

 

 

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